Managing through the summer of 2022

 After my first "relapse"  I paired back, more than I did the first. I stopped my work outs, slept in more, went to bed early.  I rebounded a bit and was able to feel more normal but still quite tired.  With vacation coming up, I was hopeful a week away would help.  Slowing down, sitting on the beach and reading definitely helped. I started some gentle yoga by the water, I slept more.  Yes, it's hard to totally relax with two boys but I did my best.    I was really hopeful this time away from work to decompress was all my body needed to be me again.   

I felt better and more rested yes, less jumpy at the kids and husband,yes....but i still had the whole body, heavy leg fatigue and the headaches.  Just a short walk to the beach I could feel it in my legs. I tried a bicycle ride I did 2 years before there and had to stop part way in as I didn't think I could do the whole thing.  I realized I had to still be patient, I still had to pace and plan..and I HATED IT. (Okay I disliked it..I tell my boys hate is a strong word:))


So..for the rest of the summer I tried to stay focused on the STOP REST PACE concept. I started following other long haulers on instagram, I started taking supplements, I continued with scalp acupuncture as needed. I had some low weeks, where I struggled and some weeks where I was feeling positive and optimistic. I through in some low impact exercise when I felt the energy.  My tried to find a rhyme and reason to my crashes.  Some were just related to my cycle, some seemed related to sleep or over doing it and some were related to mental stress.  One week was so stressful at work I needed scalp acupuncture daily to stop my labile, weeping melt downs.

Coming out of the summer I was feeling good, started a new vitamin Quercetin and thought maybe this was it.... I was hopeful and optimistic and yes I am trying to still stay that way.  The weird part with this illness is it's just so new, nobody knows...so it's all others helping others, speculating.....


Anyway, I am rambling and talking in circles..I hope you are keeping up:)


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